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Marley
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If you live with chronic illness, it’s easy to get into the habit of minimising your symptoms, saying you’re fine when you’re not, or worrying you’re wasting your GP’s time. But normal blood tests don’t always explain ongoing symptoms, and you shouldn’t have to reach breaking point before you ask for help. Medical advocacy is about being honest about how your health affects you, asking questions and leaving your GP appointment with a clear plan. 🤍 I share practical tips to help you advocate for
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I’ve posted myself crying on here many times but I want this to be proof of what this illness does to us. What other illness punishes people for trying to get better? For trying to survive? I take one step forward and it’s 10 steps back. I’m tired and in so much pain and still my comments sections tell me that i’m faking it and that this illness isn’t real. Myalgic encephalitis is REAL. This is what it looks like. #myalgicencephalomyelitis #mecfs
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A few things I’ve learned from navigating dysautonomia over the years. Sharing what’s helped me understand my symptoms better in case it helps someone else 🤍 #dysautonomia #chronicillness #mcas #healingjourney #pots
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You don’t have to have bad intentions to reinforce harmful stigma. And saying “that’s not what I meant” doesn’t change the impact #painmanagement #healthcareworker #stopthestigma #chronicpain #nursetok
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