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beyondbatten.org
Family Stories - Beyond Batten Disease Foundation
Join us in our mission to find a cure for Batten disease and prevent hundreds of similar rare genetic diseases that claim the lives of thousands of children every year.
Nov 21, 2019
Batten disease Symptoms
0:44
Angled Board and Batten How To
YouTube
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Jul 17, 2023
0:58
The Ultimate Guide to Board and Batten Siding: Part 1
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6.5K views
Jul 11, 2023
0:17
the correct way to install roof battens
YouTube
building theory
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1 month ago
Top videos
5:48
Hollywood Producer Fights to Save Daughters From Rare Disease
ABC News
ABC News
May 6, 2016
Batten Disease
nationwidechildrens.org
May 8, 2018
8:23
8K views · 107 reactions | Share the Story | Reflect Below | Engage the Hope Learn more and get involved: Rare Sisters “And my mom and I were just sobbing. She doesn’t know that piece of this story. But she gets it, in a way she’s okay with whatever happens. We’re raising our kids to die. And we believe that when they do, when that happens, they’re going to go to heaven.” - Beth and Jon | One Billion Stories | Facebook
Facebook
One Billion Stories
8K views
1 month ago
Batten disease Causes
0:52
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Sep 10, 2024
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Feb 19, 2024
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May 6, 2016
ABC News
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Batten Disease
May 8, 2018
nationwidechildrens.org
8:23
8K views · 107 reactions | Share the Story | Reflect Below | Engage
…
8K views
1 month ago
Facebook
One Billion Stories
2:32
Family fighting for cure after daughter's batten disease diagnosis
3 months ago
CBS News
1:26
“It’s Dr. Emily’s relentless effort to stop Batten disease in its tracks t
…
57.5K views
Feb 11, 2020
Facebook
Nationwide Children's Hospital
4:21
What is Batten disease? Doctor and family share insights on rare cond
…
8 months ago
Microsoft News
FOX 32 Chicago
2:58
Ultra rare ‘one-in-eight billion’ genetic disease hits 3 Alberta sibli
…
Jun 23, 2021
Global News
1:36
Family fights for a cure after batten diagnosis
3 months ago
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WHAS-TV Louisville
23:17
Ellery is diagnosed with a progressive and terminal disorder
…
614.2K views
Dec 8, 2022
Facebook
Special Books by Special Kids
A new children's book is helping families talk about rare, fatal Batte
…
Dec 3, 2022
ABC News
Kathleen Calderwood
6:00
At age seven, Jennifer’s son Michael started showing symptoms of a ra
…
283.4K views
May 11, 2021
Facebook
Stories for Caregivers
0:19
Confronting the Challenges of Batten Disease
14.3K views
1 month ago
TikTok
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5 months ago
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Oct 22, 2024
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Apr 10, 2009
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2:10
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269.8K views
Aug 18, 2023
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14:34
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4.2K views
Jun 13, 2011
YouTube
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4:17
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56.6K views
Apr 10, 2009
YouTube
Beyond Batten Disease Foundation
6:50
The Faces of Batten Disease
13.7K views
Nov 12, 2009
YouTube
Beyond Batten Disease Foundation
20:17
How he BARELY Survived a Polar Bear Attack (100% true)
4M views
Dec 4, 2022
YouTube
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23:39
Her DEATH TOUCH baffled doctors
3.8M views
Jan 7, 2023
YouTube
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Living with Batten Disease - A Personal Story
18.8K views
Dec 5, 2023
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58.1K views
Aug 13, 2024
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1.2K views
9 months ago
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10:27
Parents race to save toddler’s life after rare genetic disease diagnosi
…
145.2K views
May 19, 2021
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3:46
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8 months ago
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Sep 1, 2020
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7 months ago
YouTube
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